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Each year the Foundation selects deserving candidates, individuals battling cancer or the family members
supporting that fight, and promising young students with bright futures. to be recipients grants or scholarships
from the Patrick Comer Courage Foundation to help ease their financial burden.
From Dylan's mother, Megan Seymour: When I was 7 months pregnant, the doctors said there was a big possibility that Dylan
would have Downs Syndrome due to measurements in the nucofold. I was sent to Boston for further ultrasound tests and they
had the same conclusion. The only test to further show a definite answer was the amnio which I refused. My husband and I
decided we could handle whatever was to come.
On April 19th, 2007, Dylan was born without Downs! He was a healthy baby with 10 fingers and toes! Kris and I were
relieved. He soon became our most active and rambunctious child. The word mischievous does Dylan no justice! His speech
was delayed, but the doctor reassured me that it was because he was the youngest of three children and that this was common.
When Dylan was always sick with the minor cold, but with other kids in and out of school all day, I figured this too was
normal. In April of 2008, Dylan had been sick with the runny nose and cough for almost 3 months. We went to NC for a wedding
and as soon as we got down there Dylan’s symptom disappeared. I chalked it up to allergies.
The following year in February 2009, Dylan became very ill and he was hospitalized for the croup. At this time we also
noticed terrible bruising on his feet and legs, and also his belly. After that our world turned upside down. After his release
from the hospital, he seemed to be on the mend, but the cough came back which turned into bronchitis then into pneumonia.
His pediatrician had us coming in every day for blood work. The first few days the white cell count was high, but that is
normal when the body fights off an infection. Finally after almost two weeks of blood tests, the doctor said he was
referring us to Children’s Hospital in Boston because he couldn’t figure out what was going on. After a few weeks of
blood tests in Boston, they suggested a bone marrow aspiration to get to the bottom of it. One week later on 8/31/09 Dylan
was diagnosed with JMML, juvenile mylomonocytic leukemia. This is a rare childhood leukemia that only affects 25-50 children
per year and accounts for only 1% of all childhood leukemia.
The only treatment option for JMML is a bone marrow transplant, because chemo does nothing to kill the cancer. The search
began... our family was tested to be possible matches but none of us were. Dylan was put on the national bone marrow list.
My sister and another good friend of ours held bone marrow and blood drives in Dylan’s name and both had amazing outcomes.
While the family and friends were doing their part to be supportive, Kris and I found ourselves at the Jimmy Fund Clinic
almost every other day. Dylan’s counts were dropping dramatically and he began to undergo many blood transfusions. He was
dieing in front of our eyes and there was nothing to do but pray that he gets a match ASAP.
In the beginning of November, we got the GREAT news that Dylan has a match and that she has agreed to go through with
the procedure to save his life. Dylan was admitted to the hospital the following week due to fevers, but we ended up staying
to begin the process. On November 22nd, the heavy chemo started, and on December 3rd, his transplant was completed. This
was a horrible experience, but Dylan remained strong through it all. My husband, Kris, and I stayed with him the entire
time. My mother and stepson’s mother stayed at our home to care for our daughter. The two of them cared for our other children
during our stay at Children’s Hospital. I forget the actual release date because I lost track of time, but in early January,
Dylan was released from the hospital!
Dylan has a long road ahead and lots of care that he needs at home, as well as many visits per week to clinic. He must
still be in seclusion for about a year, which means no visitors. This is a long, lonely road, but we will walk whatever
path given to us to keep him healthy and happy.
The 2010 Patrick Comer Courage Foundation Scholarship Recipients have been named. Chris Rodgers and Tim Barrett, a freshman and
sophomore at Saint John's High School respectively, accepted their
scholarhips at the annual January luncheon.
Jim and Cheryl Comer are once again very happy with the foundation's choices. "Chris and
Tim are two great young men and we are very proud that they have chosen to attend Saint John's with assistance from PCCF."
Greg Fingar was diagnosed with pancreatic cancer in 2005. In the time since Greg, 53, was
diagnosed the family has remained extremely positive and has never once let the statistics that come
with pancreatic cancer beat them down. They have done tireless research, consulted numerous specialists,
and assembled for Greg a crackerjack team of doctors.
"If you listen to statistics, I would be dead right now”, Greg confided. But, instead, he continues to
battle this devastating disease. Greg has had several surgeries and continues state of the art chemotherapy
treatments.
Greg and his wife, Dale, and two sons are an inspiration to all families that battle cancer every day and
the Patrick Comer Courage Foundation is extremely proud to have Greg and his family as our most recent
grant recipients.
Greg joined us recently at our 2009 Patrick Comer Courage Foundation golf outing and fundraiser at Pleasant
Valley Country Club in Sutton, Massachusetts. He is shown in this photograph with his sister-in-law,
Darlene Schoen, and his wife, Dale.
On Sunday, March 8, 2009, over 100 people came to support Michele Franchi at a fundraiser at the
Knights of Columbus in Shrewsbury, Massachusetts. Michele, a single mother, is facing her second battle
with breast cancer.
The good news is, she has a great prognosis, but is struggling financially due to being unable to work
through her treatment. Jim and Cheryl Comer attended the event and presented Michele with a check from
the Patrick Comer Courage Foundation.
In December 2007, Peter Ribaudo, received a diagnosis of lymphoma - broadly described as a type of cancer
affecting blood, bone marrow and/or lymph nodes. After a series of successful radiation treatments, Peter
learned that the lymphoma returned. He began chemotherapy immediately upon diagnosis of the lymphoma’s
recurrence. Doctors detected early effects of the lymphoma in some of Peter’s organs, including his
liver.
In addition, the cancer caused lesions on a vertebra on Peter’s back, his hip and one of his femurs.
The lesions on the femur deteriorated the bone just enough to cause small stress fractures, requiring
surgery to install a steel rod in Peter’s femur.
In October 2008, Peter received a syngeneic stem cell transplant from his identical twin brother, Ben.
Doctors don't see that often and the main benefit (besides Ben's giving this gift to Peter) is that Peter
will not have to face any of the graft/host complications. When there is not a perfect match, the new
stem cells will reject the host and as a result, there are many complications that have to be dealt with
including outright rejection, illnesses related to the transplant and lots of extra treatments to deal with
these complications. This transplant will be as if Peter were giving himself the new stem cells. His body
is expected to accept the new stem cells and the new stem cells are expected to be happy to be added into
Peter's system...like old friends.
Foundation members can continue to follow Peter's story and send Peter their support through
Peter's CaringBridge website.
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